We are definitely in some kind of a quagmire here in Defiance. First, we had Jon wanting desperately to move out on his own and the doctor saying it was okay. With the home waiver program Jon could only get 14 hours of skilled help a week and as many of you can guess he needs close to that in a day. Jon is sure he can get any number of aides to volunteer some time when they leave work to get him out or into bed and he feels any number of friends would be willing to come help out in any other way whenever needed.
Somehow either we were wrong about the doctor's signing off or he changed his mind because now the doctor's saying Jon needs 24 hour care, i.e. a nursing home. If Jon moves out on his own now it would be against doctor's advice and he would not be eligible for any aides through the home waiver program. Jon is quite determined to be on his own where he can come and go at will. How that will sit with volunteers coming at specified times is quite beyond me. One of the other major problems is having enough money for deposits on rent and utilities so he has been seeking agencies which will help him.
If he had any plans for doing something constructive with his life the family would be more willing to help him through this. As it is, he seems preoccupied with gadding about town, putting himself in danger in the middle of the night; smoking, which is not recommended for a guy with diminished lung capacity; and running a tab at a local bar.
We are beyond disappointment, way beyond.
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2 comments:
I have to say it again, check into the Ticket to Work program on the Social Security website. It may be the answer. Worth at least checking into anyway. It sure helped me!!
One more comment. There are a lot of people and agencies out there that will help someone to be more independant if their independance will IMPROVE their life. No one person or agency is going to help someone to lead a lifestyle rooted in having a good time and/or abusing their body and health with alcohol and tobacco. I'm not trying to be mean Jon, it's just logic and fact! I'm praying for you Jon!
With love and in Christ!!
Mark ( Cus' )
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