Thursday, December 31, 2009

Happy New Year--he's back in Defiance!!!!

After an exhausting 36 hours Jon arrived at Brookview at 5:10 this afternoon. We started with a call yesterday around 11:30 saying he would be leaving this morning at 10. I called Carol and we got on the road around 1:30 with the intention of helping Barb pack up and load the car. When we got there Jon informed us he couldn't leave in the morning because the wheelchair couldn't leave the facility and while the company was debating that they said that nobody had paid any rent on it in months...as in at least 6 months and why did Jon still have it? But then they didn't even realize that he still had it until they were told he was leaving the Village. Then they said he could go if Jon bought the chair--$3500, but its worth at least $17000... So then the trip is on again and I think canceled one more time. At around 1 when we were eating lunch at Barb's they called and said he was leaving at 2. I hurried over to meet the gal from the wheelchair company, wrote a check for $2500--they reduced the price after umpteen calls to get things straightened out. (The chair can be serviced by the Toledo branch) and Barb and Jon were on their way by 2:30 or so. Carol and I were left behind to finish packing--managed to leave things behind on the tray table because Jon was so insistant that it not be touched when Carol was packing last night and I never thought about checking it out. Carol and I left about 20 minutes after Barb and Jon but we managed to catch up with them about 1/2 hour before reaching home. Got him settled, fed and left him to get acquainted with his new digs. His new address is:
Jon Castanien, Rm 222
Brookview Healthcare Center,
214 Harding St.
Defiance, Oh 43512

I can only imagine the rush he had when we crossed into Defiance County--he has been waiting so long for this trip! He is aleady beginning to feel like he's ready for more independence and is looking forward to resuming old friendships. The center has no set visiting hours but he generally is in bed by 10 and if it is like most places we've been they expect quiet visitors after 9 p.m.

Hope you have a great New Year!

Wednesday, December 30, 2009



Jon right before we went to the Zoo to see the lights.

The Roller Coaster Continues

First to finish off the time with the van. Jon and I thoroughly enjoyed having a van. On Saturday we went to the Iron Pony (a motorcycle shop he has been wanting to go to) and did make it to the Columbus Zoo for the lights. We went into the buildings before it got dark and after to get warm. He enjoyed it. Sunday he did go back to church with me. He said he had never been to a church like that before. I said is that good or bad? He said good. After church we went back to Iron Pony and then off to develop more film. We got back at 5:00. I dropped him off at the door and said I was going to return the van. I was on the on ramp when I realized my car keys were in his room. I went back to get them. I was just getting back on the freeway when it started to snow!!! God is so good. Jon was safe and sound before it started to snow.

Monday he gave me "permission" to sleep in Monday morning and that I didn't need to come in until late afternoon/early evening. He counts on me helping to put him to bed. At 5:00 p.m. I received a phone call from the receptionist. Jon wanted to know when I was coming in. I told her I would be there after 6:00. I got there at 6:25. Tuesday was so cold down here that after I took out the trash in the morning I didn't go anywhere the rest of the day. I didn't even go back out to bring the trash can and recycling bins back in.

Today at 11:41 Mom and I received the phone call about Jon coming home tomorrow. I got there at 2:03 after running errands. Mom and Carol arrived 4:45. Here comes the roller coaster ride. Around 3:00 the social worker comes in and says that she has to cancel him going home tomorrow. We just looked at her and she said "I'm serious". The corporate office of the wheelchair company said that Jon could not take the chair. Apparently the original sales rep had not filed some paperwork that he should have, that there had been no rent payments for the last 8 months. Then they called back and said that if the new facility would pay rent of $200-400 then Jon could take the chair. Then they called back and said no to renting it that if the facility wanted to buy it for $3500 that he could take it. The facility obviously didn't want to do that. We asked if Jon could purchase it for that amount. Around 4:15, I left to get my phone cord to recharge my phone, while I was gone the new facility called back saying that corporate had called them and said that there would be no rent, or purchasing necessary that Jon could continue to use the chair as previously agreed. So when I got back at 5:42, he was going home. I went to the bank and to pick up some dinner with Mom and when we got back at 6:15, we found out that the sales rep called the current facility and said no one from corporate had told him that so we are back off again. So as of 8:20 p.m. Jon is not leaving at 10:00 tomorrow. The sales rep is getting in tomorrow at 7:30 and will find out what is going on and will let us know in the morning what the final decision is. We are all physically and emotionally tired. Carol packed up his room while Mom and I were out at the bank and getting dinner. I loaded the boxes containing things that he does not use daily in my car. I'm pretty sure that he will be going home in the next day or two. If not I will be taking his stuff back in.

More to follow as it comes to us. Please pray that things go well tomorrow and that every one's emotions are better.

Coming to Defiance Soon-Like in 24 hours!

The Village at Westerville called just a bit ago to tell me that Jon would be leaving at 10 a.m. tomorrow morning (Thursday 31st) Carol and I are heading down this afternoon to help Barb pack and load up and we'll all be back in Defiance Thursday afternoon. What a way for Jon to usher in the new year--he's been looking forward to this day for months now!

Got to run...

Friday, December 25, 2009

Best Christmas gift!!

Over the weekend the decision was made not to come to Columbus for Christmas but to have it at Angelique's. Dad was staying in Columbus and Greg was going to come down after our celebration to spend the rest of Christmas with Jon. It was a hard decision to make. My emotions have been all over with all the changes going on lately. I prayed that Christmas is God's Sons' birthday and wherever He wanted Jon to spend Christmas so be it. I had a list of places I wanted to take Jon if we only had a van. The very next day after praying and giving it over, I received a phone call from the van rental company that they had a van for us if we still wanted it. I immediately called Mom to see if she could get the "reception hall" in her church to have Christmas. Angelique lives in the 2nd story of a house and so therefore that no longer worked. Within a half hour, Mom called back and said we could have the church from 12-6. Jon is still taking the IV and it doesn't normally end until 11 so that worked out fine. Jon and I asked if they could start the IV at 8 instead of 9 thereby leaving closer to 10:30. It takes about 15 minutes to get him strapped in and ready to go. I had called at 7:50 a.m. to remind them to start it at 8:00 and I was told it was started already. I got there at 9:40 hoping that it was almost done. It wasn't. Jon said they did not actually start it until 8:05. However, we were still loaded and actually left at 10:30!! Getting the van and taking Jon to my church for Christmas Eve service, taking him shopping and to Defiance for Christmas was my Christmas gift. We also plan on going to the Columbus Zoo for the Christams lights on Saturday and he wants to go back to my church on Sunday!!!! I told him we would have to go get a steak dinner. We haven't planned that yet. We have the van until Sunday night so we are going to use it!!!!!!

Christmas was very nice. Everyone liked having it at the church. It gave Jon room to ride around, they have a very nice and large kitchen, we ate together without being cramped and he had friends stop by to see him. Jon did not want me to publish in the post that he would be in Defiance until after the fact just because we didn't know how many people would try to come and we had to leave between 6 & 7 to get him back in time for the 9:00 IV (he could start at 10 and still be ok). His last day on the IV will be December 30th. Then the transfer papers can be submitted. We hope to have him home for good around the new year so he wanted to wait until he was home to have everyone stop in. As it was we got back at 9:25 and it was 10:20ish before his aide came in to help get him to bed. He was supposed to get his shower tonight but she didn't have time to do it all before her shift ended at 11:00. By the time she got in there I already had Jon out of his chair and into bed and was starting to get him undressed. The timing was good because it really takes two to get him undressed. His shirt and jacket we take off in the chair but the rest gets done while laying down in bed. When I left the room at 10:45, the IV had not been started yet.

When I got home and unloaded my stuff from the van I realized that I still have his eating tray in the van. Charlie (my dog) had been in the house for over 12 hours without being let out. After he came back in I was just too tired. If they give him a shower in the morning before breakfast then I should be able to get it back in time. If they don't give him a shower, then he won't have a tray to eat on. He eats at 7:00 am.

Hope everyone's Christmas was as blessed as ours. Merry Christmas to all!!!!!!

Barb

Friday, December 18, 2009

Roadblock Ahead

When the good Lord wants to put a halt to things some of us have to be hit over the head! Troubles began for Jon when he tried to transfer to another facility. It seems that the medication that he is on is not covered by Medicaid and is quite expensive, to boot. Our first choice of placement won't take him as long as he is on that medication. The social worker is looking into 2 other choices, one here in Defiance and another in Wauseon which is about forty minutes away from Defiance. When the director of the first facility told me they wouldn't take Jon ishe just said it was because of the IV. I didn't translate that as the medication being the problem but thought it was just the process of having people on IVs. Now that I know it is the medication I rather doubt that the other two places will take him since the medicine is not only not covered by Medicaid but is also quite expensive.

Jon's solution to the problem is "Fine, I will just switch back to the pills!" I can only imagine the amount of badgering he gave the wound doctor. I have on occasion said "have it your way" although lately my solution is to just walk out of the room. This doctor, however, finally gave in and said okay when he leaves he can be switched to the pills. The other two doctors who have, I gather, top priority have said absolutely no way, no how, is he going to switch back to the pills.


Jon's response was okay I'll just sign myself out of here--who knows where he thought he'd go....After some heated discussion with the social worker, bless her heart, he was convinced that leaving against doctors advice might possibly cut him off of any further coverage by Medicaid. He has reluctantly agreed to stay put and she is continuing to check out other facilities. You know how disappointed he is when he says that there is no point in our coming down for Christmas if he can't be at home. Meanwhile, I have dibs on a 2 hour stay in the activity room on Christmas day which I will know more about later today. On the way home I was even running through people we know who might not be using their van.

Yesterday was Greg's birthday and Carol and I came home from Columbus in time to pick up a cake and some Kentucky fried chicken for his birthday supper. (This is after dealing with Jon) Sat down to enjoy the meal and discovered they had not packed up several of the items I thought we needed so went back to get them. It was late by now-eightish and people were hungry enough that when I came back they had finished eating and seemed quite full, thank you! After cake and cards everyone but Angelique left and we settled down to a game of Scrabble. When it was over--she clobbered me--she went to the bathroom and noticed a dripping noise. We checked and nothing seemed to be dripping anywhere but now it sounded like water was running. We checked in the closet behind the bathroom and tried to turn off the water but to no avail. I made a frantic call to a friend in the plumbing business. After checking to make sure I had turned the water off correctly he noticed that the meter wasn't running and announced we had a broken pipe somewhere between the side of the house and the meter. Another call to the water department who of course had to know the correct spelling of our name and could we spell it slower, and then the address, we had to wait for a call from the person who would actually come and turn the water off at the street. My friend stuck around until the fellow came and helped him stab in the dark along the street until he finally hit the shut off valve. All in all, I think I have about an hour's worth of gushing water in my crawl space and soaking into the walls of the bathroom and 2 closets and probably the flooring and insulation. Sooooo, no I won't be having Jon come home to Defiance for Christmas--I might not even be home for Christmas. (And I didn't have to be hit in the head that hard, Lord.)

To top if off the lady from Toledo who is supposed to check out the house is scheduled to come around 11, stuff from the closet is everywhere, I have a therapy appointment at 9.

It is now after 8, I can call the plumber and my insurance agent and get things rolling. Hope your Christmas plans are going a lot smoother and mine. We'll probably take Angelique up on her offer and spend part of the day at her apartment if we can't get the 2 hours at the retirement center.

Again, You have a good holiday and we'll keep you posted on things--

P.S. Jon's Dad fell last week-end and had 2 collapsed vertebrae. He was operated on Monday and had them filled with a special hardening agent and is recuperating at Barb's. He seemed much better yesterday and ought to feel up to being back at his apartment some time next week, if not before.

Wednesday, December 9, 2009

Jon will be in Defiance to stay by Christmas!!!!!!!!!!!

Mom, Jon and I met with Medicaid Waiver Program today at 1:00. We talked to them for 2 hours and 40 minutes!!! The bed and hoyer will be paid through regular Medicaid but need to be ordered by a PT or OT. That will need to be ordered through the current ODJFS case manager. All requests will need to go through the case manager. The assessor for the waiver will submit his paperwork on Monday. It could take as little as 4 weeks or as long as 3 months to get approved. The approval letter will be sent to whatever Jons address is in Medicaids system. So it will follow him to Defiance. The safety assesor still needs to come out from Toledo to do his part. Once the waiver is approved, they will assign a case manager out of Toledo.

We are still going to move Jon to Defiance, it just won't be to Moms. Since his wound is not healed yet (Jon said that it had not changed in 2 weeks but this week it has started to fill back in again) and the infection is in the bone Medicaid said he will need to be in a facility. As soon as the assessor left, I asked Jon "So when do you want to go to Defiance?" He said "Tomorrow". (I knew the answer I just wanted to hear him say it).I asked "Even if it means going to another facility instead of Moms'?" He said "Yes, at least I will around more family and my friends." This will allow Medicaid time to get things approved and time for us to get the addition done or at least the walls up. It obviously won't be tomorrow (today as most of you read this) but it will at least be before Christmas. Mom walked over to the Social Workers office and gave her the name of the place in Defiance and she is starting the process.

The Medicaid waiver program will pay for the modification of Jon's current bedroom into a bathroom but it needs to go through the whole bureaucratic system. We can not start getting approval for that until we have the initial approval described above. The assessor said to plan on waiting 3 months for anything Medicaid needs to approve. They also will need to post the bathroom improvements on a bid website. All contractors need to have a medicaid provider number. We can request a certain contractor, however they will still need to post it for bids. There's no guarantee that Dean & Jon's friends can do the bathroom. He confirmed that Medicaid will not pay for an addition so that can still be done by Dean & Jon's friends.

We are all so pumped. Thank you to everyone that prayed for Jon to be home by Christmas.

Gotta go. This is the 6th night in a row that I have gotten to bed at 11:30. Charlie, my dog, has also been getting up alot at night so I am getting even less sleep. His digestive system is messed up. I am hoping to get a full nights sleep tonight, we'll see.

God bless you all.

Barb

Tuesday, December 8, 2009

We have a Medicaid meeting!!!

Tomorrow (Wednesday) at 1:00 pm Mom, Jon and the Columbus Medicare meet to discuss what Jon will need. As long as Jon is on the wound vac he will need to be in a facility. One of the questions Mom will ask is whether we can transfer Jon to a facility in Defiance. Now that he has been assigned a case worker out of Toledo, he will keep the case worker and we should not have to go through all this waiting again. So once his wound is healed and the addition is done, he should be able to come home without having to go through all this redtape. In the meantime, I am really trying and praying that we can get him in Defiance and he can have Christmas with us at Moms. I have talked to Jon's friends about the ramp and the goal is to have it up in time for Christmas.

Mom has not heard from the Toledo office yet to come out to the house.

Thursday the Village is having a Christmas party for the residents and their families. I arranged it so I don't have to work that night and can be with Jon. I don't know if Dad will come or not yet.

Please pray that Jon will be able to be transferred to Defiance before Christmas.

Barb

Saturday, December 5, 2009

There is light at the end of the tunnel!!!!!

At last we hear from Medicaid!!!!! The Toledo office will be contacting Mom in the next 2 weeks (from Thursday 12/3/09) to set up a time to come out and look at the house to let her know for sure what improvements need to be made. The Columbus office will be coming out in the next 2 weeks to assess Jon's condition in order to decide what services/needs he will have once home. So there is finally a light shining at the end of the tunnel!!!!!!! It is pushing it really close to say that Jon will be home by Christmas to stay. If the rental van comes through Dad has agreed to drive Jon up to Mom's for the day. He can't spend the night until we have a hoyer or some way of getting Jon in and out of bed. I have not seen Jon since we received the news. I will be going over this evening.

Jon met with the Rehab Doctor. She wasn't sure why they were meeting with her. It was a very frustrating visit for Mom and Jon. The Rehab Doctor doesn't see a need for Jon to come to Dodd but says he needs to have a pyschological test (nothing out of the ordinary, typical for situation). We are assuming he will go to Dodd for the test unless it is something that Village of Westerville can administer.

Jon is finally starting the IV drip for the wound infection. He was given a choice between the drip and pills and he chose the pills as he did not want to be tied down to a drip. He likes his freedom and he isn't able to drive around when on the drip. The IV drip is more effective and the pills are not working as they would like so like it or not he is on the drip.

We have been looking at a van to purchase. It is a 1987 Chevy van that has around 75000 miles on it for $2,500. Dad and Mom are saying no, Jon and I are saying we would like something for at least a year until we can get something newer. We don't know how owning a $14,000 - 29,000 van affects Jon's Medicaid. That is the range we have found on the internet for current handicapped accessible vans. It costs roughly $50,000 to convert a typical van to a handicapped accessible van. Medicaid will pay for the conversion only if you currently own a van. They will not pay for a van just the conversion. To me it is cheaper to buy one that is already converted but we are dealing with bureaucracy.

That is all for now. I will write more after talking with Jon. I will see if he wants to write a post.

Please pray that we can bring Jon home before Christmas to stay!!!!

Barb