My Apologies!

I knew it had been a while since I had posted and had hoped Angelique would post Saturday after our visit with Jon. The cold weather has wreaked havoc with my computer at home--doesn't always want to receive or send due to ice and snow on the receiver.

There have been good days along with the discouraging ones. Jon's mental state is not always consistent. Sometimes we can work him out of his crabby state and sometimes not. He doesn't limit his arguments to just us, however, sometimes he argues with the doctor and more times than not, I hear, gives the nurses a rough time. (The doctor had to remind him during one interview that he, not Jon, was in charge...) He has finally just come out and said he's just plain depressed. I kinda think he feels deserted.

His eating is still poor although he scarfs down salads everyday...mostly iceberg lettuce and carrots so not much in the way of calories for all that effort. He has a chef salad almost every evening and usually polishes off everything--but the meat! Jello and peaches-combined or alone-are two other foods he readily eats. He has grown too used to fast foods in the past to recognize a good meal when he sees it but sometimes what looks good here is definitely not! Even his favorite foods that we bring in just don't seem to taste right.

He has one bedsore that is really causing some trouble and what looks to me like another one starting in the area where I would imagine the left pelvic bone is. While the larger one is getting better there is concern because it should be healing faster. Part of the slowness in healing is due to an inadequate supply of protein. Jon feels that it doesn't matter if he doesn't eat a good meal because they supplement with tube feedings. We've had to explain today that there just isn't enough protein in a can to do the trick. I really hoped that refried beans might be part of the solution but wouldn't you know, he doesn't like that! (I can't get the idea across that food is fuel not necessarily pleasure!)The situation might also have been different if he had some meat on his bones also!

Tomorrow morning he goes in for a 3 phase bone scan for the sore in the area of his tailbone. While they don't think it has gone that deep they want to make sure. If the results are good then there is a chance he can go to Dodd Hall in Columbus next week...how many weeks have I said that now?

Will try to do better-include in your prayers patience and strength for the rest of the family as well as for Jon.

Thanks.